My name is Diane and I started having dizziness and vertigo
in April 1993 making it now 7 years. My husband and I went
on a cruise and I had horrible sea sickness. It was so bad,
that I had to have an injection while on board so I would
stop vomiting. Several hours after this shot,I felt much
better. On the third day of our trip, we went tubing (you
know, when the boat pulls a big raft that you sit on). Well,
the raft tipped over and I hit my head and ear very hard
on the water, but really thought nothing of it. At the next
stop though, I had horrible sea legs when I got off the boat
and just attributed it to the cruise itself.
When we arrived home, I still had these awful sealegs. The
room felt like it was spinning all the time, and just walking
was difficult. I found it even hard to drive, and at the
time I was working as a cardiac nurse for both the hospital
and home care patients, so needless to say,working was
more than difficult. I took a few weeks vacation after
trying to go to work unsuccessfully. But things were not
getting better. I found I was doing better in the morning,
only to be incapacitated by the evening. I ended up in
the emergency room one day after feeling so bad, and I
found out I had carbon monoxide poisioning. Apparently,
we had a slow leak in our furnace that was giving off low
levels. Thank God I always keep windows cracked in my house.
I'm still not sure if this has anything to do with my problems
and I don't think I'll ever know. The leak was there before
our trip too. Anyway, I was referred to an ENT who felt
this was viral in origin. I had an MRI, blood work, hearing
tests and an ABR,......all were negative but the ABR, which
I believe shows problems with the vestibular nerve. The
doctor I was seeing started my on a drug called Optimine,
which is used as an antihistamine. He finds it useful for
vertigo and is doing research in this area.
About 3 or 4 months after beginning treatment, I found out
I was pregnant with my daughter and had to stop the meds.
But luckily, I felt much better pregnant for some reason.
I still had vertigo and spinning sensations, but not as
severe and now only when I wasn't moving. After she was
born, I had several weeks of severe symptoms again, and
then it tapered to my "usual". I began treatment
again with the same ENT and had another MRI which was negative.
I also had a test where they inserted needles in my ears.
I believe they were testing the cochlear function, but
this too was negative. So they started the Optimine again
and in another month I was pregnant again!!!!!!( I tease
my ENT that he is really a fertility doc!!). I stopped
the drugs once again, had my son in November 1997. When
he was about 18 months, I was very ill again, not only
with the dizzies, but I also was lucky enough to get Lyme
disease. So I dealt with that first and it took me almost
until now to get rid of those symptoms.
In April of this year, I started back with my ENT. He finally
did an Eng..Negative ....and started me back on the meds.
So here I am now, with the same symptoms, some days worse
than others.But I constantly have the dizzies, and mostly
when I stand or sit
still. I have a very difficult time sitting in restaurants,
church or even at a kitchen table. I do best in a chair that
swivels because I can block out my own rocking sensation.
I have just begun PT on my neck which is a total mess and
will see an orthopaedist soon to do an MRI of the c-spine.
I have trouble with my vision as well. I do not work anymore,
and quite frankly don't know if that would be possible. I
do have 2 young children and that is hard work enough right
now for me.Like many of you, I can't wait for the day to
be normal again and feel like life is full. If I could be
cured tomorrow, I'd never take for granted all the wonderful
things out there that I could do!! People who are well and
healthy don't realize all the things we miss out on. I think
because we look well, they think we feel well. And I know
I'm the master of disguise.....I don't like anyone to know
because in the beginning, I had alot of people who did not
understand. The dizzy lounge has truly been a Godsend to
me. Everyone is so wonderful and
supportive and really understand the things we go thru day
after day. I feel blessed that I found you all!!
Love, Diane
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